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      Are Parents Getting it Right? A Survey of Parents’ Internet Use for Children’s Health Care Information

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          Abstract

          Background

          The use of the Internet to search for medical and health-related information is increasing and associated with concerns around quality and safety.

          Objective

          We investigated the current use and perceptions on reliable websites for children’s health information by parents.

          Methods

          Following institutional ethics approval, we conducted a survey of parents/guardians of children presenting for day surgery. A 20-item survey instrument developed and tested by the investigators was administered.

          Results

          Ninety-eight percent of respondents reported that they used the Internet to search for information about their child’s health. Many respondents reported beginning their search at public search engines (80%); less than 20% reported starting their search at university/hospital-based websites. Common conditions such as colds/flu, skin conditions and fever were the most frequently searched, and unique conditions directly affecting the child were second. Despite low usage levels of university/hospital-based websites for health information, the majority of respondents (74%) regarded these as providing safe, accurate, and reliable information. In contrast, only 24% of respondents regarded public search engines as providing safe and reliable information. Fifty percent of respondents reported that they cross-checked information found on the internet with a family physician.

          Conclusions

          An unprecedented majority of parents and guardians are using the Internet for their child’s health information. Of concern is that parents and guardians are currently not using reliable and safe sources of information. Health care providers should begin to focus on improving access to safe, accurate, and reliable information through various modalities including education, designing for multiplatform, and better search engine optimization.

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          Most cited references16

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          Health information seeking by parents in the Internet age.

          Studies have shown increasing Internet use for health information. We aimed to broadly examine parents' utilisation of information sources for their children's health, their trust in them and to define the role of the Internet for children's health information Interview of a convenience sample of parents of patients presenting to a tertiary paediatric emergency department (ED) (Royal Children's Hospital, Melbourne, Australia) in 2006/2007. A total of 360 parents completed the interview. Parents had used on average five sources of health information for their children in the previous 6 months. In the previous 6 months and immediately prior to the ED visit, general practitioners were consulted for health information by 87% and 39%, chemists by 44% and 2%, the Internet by 43% and 6% and telephone advice health lines by 30% and 10%, respectively. Of these sources, parents 'greatly trusted' Royal Children's Hospital ED doctors and nurses 82% (n = 112) their regular general practitioners in 73% (n = 303), chemists in 45% (n = 160), telephone advice health lines (Nurse-On-Call) in 42% (n = 90) and the Internet in general in 10% (n = 112). Overall, 52% had sought health information for their children on the Internet. Only 20% knew and 11% had ever used the regional children's hospital web site (http://www.rch.org.au/kidsinfo), but 97% of the Internet users reported they would trust this information. While using numerous different sources, parents in this study mostly use and trust traditional sources of health information. Scores of respondents use the Internet to seek health information for their children and would value easier access to Internet sources that they trust.
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            Use of the Internet by parents of paediatric patients.

            We aimed to determine the rate of Internet use for obtaining medical information by health-care patients at a tertiary paediatric hospital, whether the Internet may influence patients' attitudes to health-care services and health-care providers and whether patients would prefer the assistance of a professional informatics officer. An anonymous questionnaire randomly distributed to 450 subjects at Sydney Children's Hospital, Sydney, Australia. A total of 294 (65%) questionnaires were returned. Overall Internet use for medical information was 64% (189/294). Most (97%; 183/189) respondents reported 'wanting to know more' as the reason they sought information on the Internet. Eighty-eight per cent (167/189) of respondents reported that they trust their doctor more than the Internet. Twenty-one per cent (39/189) had presented their doctor with information about which he/she was unaware and 18% (34/189) had altered a health-care decision because of information found on the Internet. The Internet had influenced questions asked of doctors in 83% (156/189). Eighty-six per cent (252/294) of all respondents were in favour of professional assistance to obtain medical information. A large number of patients use the Internet to find information that influences their attitudes to health care. The services of a medical informatics professional would likely benefit both patients and doctors.
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              Quality of health information on the Internet in pediatric neuro-oncology.

              The Internet is now the single largest source of health information and is used by many patients and their families who are affected by childhood brain tumors. To assess the quality of pediatric neuro-oncology information on the Internet, we used search engines to look for information on five common tumor types (brain stem glioma, craniopharyngioma, ependymoma, low-grade glioma, and medulloblastoma). The Web sites were evaluated for content quality by using the validated DISCERN rating instrument. Breadth of content and its accuracy were also scored by a checklist tool. Readability statistics were computed on the highest-rated sites. Of 114 evaluated Web sites, the sources were as follows: institutional, 46%; commercial, 35%; charitable, 15%; support group, 2%; and alternative medicine, 2%. Good interobserver correlation was found for both ratings instruments. The DISCERN tool rated Web sites as excellent (4%), good (7%), fair (29%), poor (39%), or very poor (21%). Only 5% of the Web sites provided one or more inaccurate pieces of information. Web sites were found deficient in topics covering etiology, late effects, prognosis, and treatment choices. Few sites offered information in languages other than English, and readability statistics showed an average required reading level of U.S. grade 12+ (the suggested level being grades 6-8 for an adult audience). The Internet is increasingly being used as a source of oncology information for patients and their families. Health care professionals should be actively involved in developing high-quality information for use in the next generation of Web sites.
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                Author and article information

                Contributors
                Journal
                Interact J Med Res
                Interact J Med Res
                IJMR
                Interactive Journal of Medical Research
                JMIR Publications Inc. (Toronto, Canada )
                1929-073X
                Apr-Jun 2015
                22 June 2015
                : 4
                : 2
                : e12
                Affiliations
                [1] 1The Hospital for Sick Children Department of Anesthesia and Pain Medicine Toronto, ONCanada
                [2] 2The Hospital for Sick Children Surgical Day Care Unit Toronto, ONCanada
                [3] 3The Hospital for Sick Children Department of Diagnostic Imaging Toronto, ONCanada
                [4] 4University of Toronto Department of Anesthesia Toronto, ONCanada
                Author notes
                Corresponding Author: Clyde T Matava clyde.matava@ 123456sickkids.ca
                Author information
                http://orcid.org/0000-0001-5705-8404
                http://orcid.org/0000-0003-4093-9664
                http://orcid.org/0000-0003-1261-2576
                http://orcid.org/0000-0002-7680-1926
                http://orcid.org/0000-0001-6036-8251
                http://orcid.org/0000-0002-9502-0981
                Article
                v4i2e12
                10.2196/ijmr.3790
                4526953
                26099207
                ea69faf3-c98f-4195-80ac-61e70c978bf2
                ©Carolyne Pehora, Nisha Gajaria, Melyssa Stoute, Sonia Fracassa, Refilwe Serebale-O'Sullivan, Clyde T Matava. Originally published in the Interactive Journal of Medical Research (http://www.i-jmr.org/), 22.06.2015.

                This is an open-access article distributed under the terms of the Creative Commons Attribution License ( http://creativecommons.org/licenses/by/2.0/), which permits unrestricted use, distribution, and reproduction in any medium, provided the original work, first published in the Interactive Journal of Medical Research, is properly cited. The complete bibliographic information, a link to the original publication on http://www.i-jmr.org/, as well as this copyright and license information must be included.

                History
                : 18 August 2014
                : 4 February 2015
                : 4 March 2015
                : 23 March 2015
                Categories
                Original Paper
                Original Paper

                internet,pediatrics,health information technology
                internet, pediatrics, health information technology

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