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      Thinking ethical and regulatory frameworks in medicine from the perspective of solidarity on both sides of the Atlantic

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          Abstract

          This article provides a concise overview of the history of scholarship on solidarity in Europe and North America. While recent decades have seen an increase in conceptual and scholarly interest in solidarity in North America and other parts of the Anglo-Saxon world, the concept is much more strongly anchored in Europe. Continental European politics in particular have given rise to two of the most influential traditions of solidarity, namely, socialism and Christian ethics. Solidarity has also guided important public instruments and institutions in Europe (e.g., welfare, healthcare, etc.). Despite the much stronger affinity of continental European societies to solidaristic thinking, we argue that solidarity has much to offer for addressing societal challenges on both sides of the Atlantic and beyond. After proposing a working definition of solidarity that highlights its utility for guiding policy and practice, we give an example of how a solidarity-based perspective can shape instruments for the governance of data use.

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          Most cited references60

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          Taking Stock in Our Progress on Individualism-Collectivism: 100 Years of Solidarity and Community

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            A solidarity-based approach to the governance of research biobanks.

            New opportunities for large-scale data linkage and data-mining have rendered biobanks one of the core resources of medical research in the twenty-first century. At the same time, research biobanking has been seen to pose particular ethical and legal challenges pertaining to, for example, data protection, and the minimisation of other risks for participants. These measures have in turn led to heavy administrative, logistical, and financial costs and attracted criticism for unduly impeding disease research. Based on a newly formulated approach to solidarity, we propose an approach to governance that recognises people's willingness to participate in a public research biobank, and poses stronger emphasis on harm mitigation. We argue that such a model avoids some of the pitfalls of previous approaches. It also allows moving beyond overly restrictive and burdensome, exclusively autonomy-based governance towards governance that is reflective of people's willingness to accept costs to assist others.
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              The rise of the network society

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                Author and article information

                Contributors
                barbara.prainsack@kcl.ac.uk
                a.buyx@iem.uni-kiel.de
                Journal
                Theor Med Bioeth
                Theor Med Bioeth
                Theoretical Medicine and Bioethics
                Springer Netherlands (Dordrecht )
                1386-7415
                1573-0980
                8 December 2016
                8 December 2016
                2016
                : 37
                : 6
                : 489-501
                Affiliations
                [1 ]Department of Global Health & Social Medicine, King’s College London, Strand Campus, 2.10 East Wing, King’s Building, London, WC2R 2LS UK
                [2 ]Institute of Experimental Medicine, Christian-Albrechts-Universität zu Kiel, Arnold-Heller-Str. 3, Haus 28, 24105 Kiel, Germany
                Article
                9390
                10.1007/s11017-016-9390-8
                5167769
                27933474
                dec7202a-3440-4a99-8fec-99342e4df791
                © The Author(s) 2016

                Open AccessThis article is distributed under the terms of the Creative Commons Attribution 4.0 International License ( http://creativecommons.org/licenses/by/4.0/), which permits unrestricted use, distribution, and reproduction in any medium, provided you give appropriate credit to the original author(s) and the source, provide a link to the Creative Commons license, and indicate if changes were made.

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                © Springer Science+Business Media Dordrecht 2016

                Applied ethics
                solidarity,personal data use,harm mitigation fund,health policy,data protection regulation

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