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      Prevalence and correlates of advance care directives among older Australians accessing health and residential aged care services: multicentre audit study

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          Abstract

          Objectives

          It is important that the outcomes of advance care planning (ACP) conversations are documented and available at the point of care. Advance care directives (ACDs) are a subset of ACP documentation and refer to structured documents that are completed and signed by competent adults. Other ACP documentation includes informal documentation by the person or on behalf of the person by someone else (eg, clinician, family). The primary objectives were to describe the prevalence and correlates of ACDs among Australians aged 65 and over accessing health and residential aged care services. The secondary aim was to describe the prevalence of other ACP documentation.

          Design and setting

          A prospective multicentre health record audit in general practices (n=13), hospitals (n=12) and residential aged care facilities (RACFs; n=26).

          Participants

          503 people attending general practice, 574 people admitted to hospitals and 1208 people in RACFs.

          Primary and secondary outcome measures

          Prevalence of one or more ACDs; prevalence of other ACP documentation.

          Results

          29.8% of people had at least one ACD on file. The majority were non-statutory documents (20.9%). ACD prevalence was significantly higher in RACFs (47.7%) than hospitals (15.7%) and general practices (3.2%) (p<0.001), and varied across jurisdictions. Multivariate logistic regression showed that the odds of having an ACD were positively associated with greater functional impairment and being in an RACF or hospital compared with general practice. 21.6% of people had other ACP documentation.

          Conclusions

          In this study, 30% of people had ACDs accessible and a further 20% had other ACP documentation, suggesting that approximately half of participants had some form of ACP. Correlates of ACD completion were greater impairment and being in an RACF or hospital. Greater efforts to promote and standardise ACDs across jurisdictions may help to assist older people to navigate and complete ACDs and to receive care consistent with their preferences.

          Trial registration number

          ACTRN12617000743369.

          Related collections

          Most cited references32

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          Defining Advance Care Planning for Adults: A Consensus Definition From a Multidisciplinary Delphi Panel.

          Despite increasing interest in advance care planning (ACP) and previous ACP descriptions, a consensus definition does not yet exist to guide clinical, research, and policy initiatives.
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            Efficacy of advance care planning: a systematic review and meta-analysis.

            To systematically review the efficacy of advance care planning (ACP) interventions in different adult patient populations. Systematic review and meta-analyses. Medline/PubMed, Cochrane Central Register of Controlled Trials (1966 to September 2013), and reference lists. Randomized controlled trials that describe original data on the efficacy of ACP interventions in adult populations and were written in English. Fifty-five studies were identified. Study details were recorded using a predefined data abstraction form. Methodological quality was assessed using the PEDro scale by 2 independent reviewers. Meta-analytic techniques were conducted using a random effects model. Analyses were stratified for type of intervention: 'advance directives' and 'communication.' Primary outcome measures were completion of advance directives and occurrence of end-of-life discussions. Secondary outcomes were concordance between preferences for care and delivered care, knowledge of ACP, end-of-life care preferences, quality of communication, satisfaction with healthcare, decisional conflict, use of healthcare services, and symptoms. Interventions focusing on advance directives as well as interventions that also included communication about end-of-life care increased the completion of advance directives and the occurrence of end-of-life care discussions between patients and healthcare professionals. In addition, interventions that also included communication about ACP, improved concordance between preferences for care and delivered care and may improve other outcomes, such as quality of communication. ACP interventions increase the completion of advance directives, occurrence of discussions about ACP, concordance between preferences for care and delivered care, and are likely to improve other outcomes for patients and their loved ones in different adult populations. Future studies are necessary to reveal the effective elements of ACP and should focus on the best way to implement structured ACP in standard care. Copyright © 2014 AMDA – The Society for Post-Acute and Long-Term Care Medicine. Published by Elsevier Inc. All rights reserved.
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              Approximately One In Three US Adults Completes Any Type Of Advance Directive For End-Of-Life Care

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                Author and article information

                Journal
                BMJ Open
                BMJ Open
                bmjopen
                bmjopen
                BMJ Open
                BMJ Publishing Group (BMA House, Tavistock Square, London, WC1H 9JR )
                2044-6055
                2019
                15 January 2019
                : 9
                : 1
                : e025255
                Affiliations
                [1 ] departmentAdvance Care Planning Australia , Austin Health , Heidelberg, Victoria, Australia
                [2 ] departmentFaculty of Medicine, Dentistry and Health Science , University of Melbourne , Melbourne, Victoria, Australia
                [3 ] departmentDepartment of Epidemiology and Preventative Medicine , Monash University , Melbourne, Victoria, Australia
                [4 ] departmentRural Clinical School of Western Australia , University of Western Australia , Albany, Western Australia, Australia
                [5 ] departmentCentre for Learning and Research in Palliative Care, Hammond Care , Greenwich Hospital and Sydney Medical School, University of Sydney , Sydney, New South Wales, Australia
                Author notes
                [Correspondence to ] Dr Karen M Detering; karen.detering@ 123456austin.org.au
                Article
                bmjopen-2018-025255
                10.1136/bmjopen-2018-025255
                6340468
                30647047
                6fa754f6-2b4b-4f19-8fb8-f0600da9ee2f
                © Author(s) (or their employer(s)) 2019. Re-use permitted under CC BY-NC. No commercial re-use. See rights and permissions. Published by BMJ.

                This is an open access article distributed in accordance with the Creative Commons Attribution Non Commercial (CC BY-NC 4.0) license, which permits others to distribute, remix, adapt, build upon this work non-commercially, and license their derivative works on different terms, provided the original work is properly cited, appropriate credit is given, any changes made indicated, and the use is non-commercial. See: http://creativecommons.org/licenses/by-nc/4.0/.

                History
                : 06 July 2018
                : 20 November 2018
                : 05 December 2018
                Funding
                Funded by: FundRef http://dx.doi.org/10.13039/501100003921, Department of Health, Australian Government;
                Categories
                Patient-Centred Medicine
                Research
                1506
                1722
                Custom metadata
                unlocked

                Medicine
                advance care planning,advance care directive,prevalence,quality in health care,clinical audit

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