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      What do people with lung cancer and stroke expect from patient navigation? A qualitative study in Germany

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          Abstract

          Objective

          This qualitative study investigated patients’ needs and wishes in relation to patient navigation.

          Design

          A qualitative interview study was conducted. Participants were invited to take part in three in-depth interviews over a period of 6–12 months. Thematic analysis was used.

          Setting

          Interviewees were sought in the Berlin metropolitan area of Germany in academic university hospitals, in rehabilitation clinics and through self-help organisations.

          Participants

          The sample consisted of individuals diagnosed with lung cancer (n=20) or stroke (n=20).

          Results

          From the perspective of interviewees, patient navigators should function as consistent contact persons, present during the whole care trajectory. Their role would be to guide patients through an often confusing healthcare landscape, offering practical, advisory and emotional assistance corresponding to patients’ needs. The study shows that—independent of the disease—participants had similar expectations and needs regarding support from navigators.

          Conclusion

          For chronic and complex diseases—as is the case with lung cancer and stroke—it appears less important for navigators to fulfil disease-specific tasks. Rather, they should ensure that patients’ more general needs, in relation to social, practical and emotional support, are met in a way that suits their individual wishes. Following these results, patient navigation programmes might be designed to include generic elements, which should then be adapted to the infrastructure in a particular healthcare region and to the particularities of a specific healthcare system.

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          Most cited references63

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          Using thematic analysis in psychology

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            Whatever happened to qualitative description?

            The general view of descriptive research as a lower level form of inquiry has influenced some researchers conducting qualitative research to claim methods they are really not using and not to claim the method they are using: namely, qualitative description. Qualitative descriptive studies have as their goal a comprehensive summary of events in the everyday terms of those events. Researchers conducting qualitative descriptive studies stay close to their data and to the surface of words and events. Qualitative descriptive designs typically are an eclectic but reasonable combination of sampling, and data collection, analysis, and re-presentation techniques. Qualitative descriptive study is the method of choice when straight descriptions of phenomena are desired. Copyright 2000 John Wiley & Sons,
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              Content analysis and thematic analysis: Implications for conducting a qualitative descriptive study.

              Qualitative content analysis and thematic analysis are two commonly used approaches in data analysis of nursing research, but boundaries between the two have not been clearly specified. In other words, they are being used interchangeably and it seems difficult for the researcher to choose between them. In this respect, this paper describes and discusses the boundaries between qualitative content analysis and thematic analysis and presents implications to improve the consistency between the purpose of related studies and the method of data analyses. This is a discussion paper, comprising an analytical overview and discussion of the definitions, aims, philosophical background, data gathering, and analysis of content analysis and thematic analysis, and addressing their methodological subtleties. It is concluded that in spite of many similarities between the approaches, including cutting across data and searching for patterns and themes, their main difference lies in the opportunity for quantification of data. It means that measuring the frequency of different categories and themes is possible in content analysis with caution as a proxy for significance. © 2013 Wiley Publishing Asia Pty Ltd.
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                Author and article information

                Journal
                BMJ Open
                BMJ Open
                bmjopen
                bmjopen
                BMJ Open
                BMJ Publishing Group (BMA House, Tavistock Square, London, WC1H 9JR )
                2044-6055
                2021
                23 December 2021
                : 11
                : 12
                : e050601
                Affiliations
                [1 ]departmentInstitute of Public Health , Charité – Universitätsmedizin Berlin, corporate member of Freie Universität Berlin, Humboldt-Universität zu Berlin, and Berlin Institute of Health , Berlin, Germany
                [2 ]departmentInstitute of Social Medicine and Epidemiology , Brandenburg Medical School Theodor Fontane , Brandenburg/Havel, Germany
                [3 ]departmentCharité Comprehensive Cancer Center , Charité – Universitätsmedizin Berlin, corporate member of Freie Universität Berlin, Humboldt-Universität zu Berlin, and Berlin Institute of Health , Berlin, Germany
                [4 ]departmentBavarian Health and Food Safety Authority , Bavarian Cancer Registry , Nuremberg, Germany
                [5 ]departmentDept clinical epidemiology , Leiden University Medical Center , Leiden, The Netherlands
                [6 ]departmentFaculty of Health Sciences , Brandenburg Medical School Theodor Fontane , Neuruppin, Germany
                Author notes
                [Correspondence to ] Mrs Hella Fügemann; hella.fuegemann@ 123456charite.de
                Author information
                http://orcid.org/0000-0001-7920-7351
                http://orcid.org/0000-0002-8852-4620
                Article
                bmjopen-2021-050601
                10.1136/bmjopen-2021-050601
                8710862
                34949615
                647a5b2e-94ac-42a2-bac3-0fcd951c033d
                © Author(s) (or their employer(s)) 2021. Re-use permitted under CC BY-NC. No commercial re-use. See rights and permissions. Published by BMJ.

                This is an open access article distributed in accordance with the Creative Commons Attribution Non Commercial (CC BY-NC 4.0) license, which permits others to distribute, remix, adapt, build upon this work non-commercially, and license their derivative works on different terms, provided the original work is properly cited, appropriate credit is given, any changes made indicated, and the use is non-commercial. See:  http://creativecommons.org/licenses/by-nc/4.0/.

                History
                : 26 February 2021
                : 03 November 2021
                Funding
                Funded by: FundRef http://dx.doi.org/10.13039/501100002347, Bundesministerium für Bildung und Forschung;
                Award ID: 01GY1601
                Categories
                Qualitative Research
                1506
                1725
                Original research
                Custom metadata
                unlocked

                Medicine
                qualitative research,public health,respiratory tract tumours,stroke
                Medicine
                qualitative research, public health, respiratory tract tumours, stroke

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