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      Esthetic, Functional, and Everyday Life Assessment of Individuals with Cleft Lip and/or Palate

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          Abstract

          Objectives. To evaluate the level of satisfaction of individuals with cleft lip and/or palate (CLP) and their parents concerning the esthetic and functional treatment outcomes, the impact of the cleft on everyday life, and potential associations with treatment outcome satisfaction. Subjects and Methods. The sample consisted of 33 patients (7 CP, 20 unilateral CLP, and 6 bilateral CLP; median age: 17.1, range: 9.0–33.1 years) and 30 parents, who responded to a questionnaire in an interview-guided session. All participants received their orthodontic treatment at the Department of Orthodontics in the University of Athens. Results. Patients and their parents were quite satisfied with esthetics and function. Patients with UCLP primarily were concerned about nose esthetics (BCLP about lip esthetics and CP about speech). Increased satisfaction was associated with decreased influence of the cleft in everyday life (0.35 < rho < 0.64, P < 0.05). Parents reported significant influence of the cleft on family life, while patients did not. Conclusions. Despite the limited sample size of subgroups, the main concerns of patients with different cleft types and the importance of satisfying lip, nose, and speech outcomes for an undisturbed everyday life were quite evident. Thus, the need for targeted treatment strategies is highlighted for individuals with cleft lip and/or palate.

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          Most cited references30

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          Uses and abuses of coefficient alpha.

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            Observational research methods. Research design II: cohort, cross sectional, and case-control studies.

            N Mann (2002)
            Cohort, cross sectional, and case-control studies are collectively referred to as observational studies. Often these studies are the only practicable method of studying various problems, for example, studies of aetiology, instances where a randomised controlled trial might be unethical, or if the condition to be studied is rare. Cohort studies are used to study incidence, causes, and prognosis. Because they measure events in chronological order they can be used to distinguish between cause and effect. Cross sectional studies are used to determine prevalence. They are relatively quick and easy but do not permit distinction between cause and effect. Case controlled studies compare groups retrospectively. They seek to identify possible predictors of outcome and are useful for studying rare diseases or outcomes. They are often used to generate hypotheses that can then be studied via prospective cohort or other studies.
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              The impact of orofacial clefts on quality of life and healthcare use and costs.

              Orofacial clefts are common birth defects that may impose a large burden on the health, quality of life, and socioeconomic well-being of affected individuals and families. They also result in significant healthcare use and costs. Understanding the impact of orofacial clefts on these outcomes is important for identifying unmet needs and developing public policies to reduce the burden of orofacial clefts at the individual, family and societal levels. This paper reviews and summarizes the main findings of recent studies that have evaluated the impact of orofacial clefts on these outcomes, with a focus on quality of life, socioeconomic outcomes, long-term health, and healthcare use and costs. Several studies identify an increased burden of orofacial clefts on these outcomes, but some of the findings are inconsistent. A summary of the primary limitations of the studies in this area is presented, along with recommendations and directions for future research.
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                Author and article information

                Journal
                Biomed Res Int
                Biomed Res Int
                BMRI
                BioMed Research International
                Hindawi Publishing Corporation
                2314-6133
                2314-6141
                2015
                5 April 2015
                : 2015
                : 510395
                Affiliations
                1Department of Orthodontics and Dentofacial Orthopedics, University of Bern, Freiburgstrasse 7, 3010 Bern, Switzerland
                2Department of Orthodontics, School of Dentistry, University of Athens, 2 Thivon Street, Goudi, 115 27 Athens, Greece
                3Department of Orthodontics, University of Geneva, Rue Barthélemy-Menn 19, 1205 Geneva, Switzerland
                Author notes
                *Nikolaos Gkantidis: nikosgant@ 123456yahoo.gr

                Academic Editor: Takashi Yamashiro

                Author information
                http://orcid.org/0000-0002-3180-6272
                Article
                10.1155/2015/510395
                4431599
                26064918
                4b6bd622-085a-4342-b6dd-05c3aaa5639a
                Copyright © 2015 Nikolaos Gkantidis et al.

                This is an open access article distributed under the Creative Commons Attribution License, which permits unrestricted use, distribution, and reproduction in any medium, provided the original work is properly cited.

                History
                : 7 December 2014
                : 8 February 2015
                Categories
                Research Article

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