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      Development of Therapeutic Alliance and Social Presence in a Digital Intervention for Pediatric Concussion: Qualitative Exploratory Study

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          Abstract

          Background

          Despite the promising benefits of self-guided digital interventions for adolescents recovering from concussion, attrition rates for such interventions are high. Evidence suggests that adults can develop therapeutic alliance with self-guided digital interventions, which is in turn associated with intervention engagement. However, no research has examined whether adolescents develop therapeutic alliance with self-guided digital interventions and what factors are important to its development. Additionally, social presence—the extent to which digital encounters feel like they are occurring in person—may be another relevant factor to understanding the nature of the connection between adolescents and a self-guided digital intervention, though this has yet to be explored.

          Objective

          This qualitative study explored the extent to which adolescents recovering from concussion developed therapeutic alliance and social presence during their use of a self-guided digital mindfulness-based intervention. Additionally, this study aimed to determine factors important to adolescents’ development of therapeutic alliance and social presence with the intervention.

          Methods

          Adolescents aged between 12 and 17.99 years who sustained a concussion were recruited from 2 sites: a pediatric emergency department up to 48 hours after a concussion and a tertiary care clinic over 1 month following a concussion to capture adolescents who had both acute and persisting symptoms after concussion. Participants (N=10) completed a 4-week mindfulness-based intervention delivered through a smartphone app. Within the app, participants listened to audio recordings of mindfulness guides (voice actors) narrating psychoeducation and mindfulness practices. At 4 weeks, participants completed questionnaires and a semistructured interview exploring their experience of therapeutic alliance and social presence with the mindfulness guides in the intervention.

          Results

          Themes identified within the qualitative results revealed that participants developed therapeutic alliance and social presence by “developing a genuine connection” with their mindfulness guides and “sensing real people.” Particularly important to the development of therapeutic alliance and social presence were the mindfulness guides’ “personal backgrounds and voices,” such that participants felt more connected to the guides by knowing information about them and through the guides’ calm tone of voice in audio recordings. Quantitative findings supported qualitative results; participants’ average score for therapeutic alliance was far above the scale midpoint, while the mixed results for social presence measures aligned with qualitative findings that participants felt that the mindfulness guides seemed real but not quite as real as an in-person connection would.

          Conclusions

          Our data suggest that adolescents can develop therapeutic alliance and social presence when using digital interventions with no direct human contact. Adolescents’ development of therapeutic alliance and social presence with self-guided digital interventions can be bolstered by increasing human-like qualities (eg, real voices) within interventions. Maximizing therapeutic alliance and social presence may be a promising way to reduce attrition in self-guided digital interventions while providing accessible treatment.

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          Most cited references61

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          Research electronic data capture (REDCap)--a metadata-driven methodology and workflow process for providing translational research informatics support.

          Research electronic data capture (REDCap) is a novel workflow methodology and software solution designed for rapid development and deployment of electronic data capture tools to support clinical and translational research. We present: (1) a brief description of the REDCap metadata-driven software toolset; (2) detail concerning the capture and use of study-related metadata from scientific research teams; (3) measures of impact for REDCap; (4) details concerning a consortium network of domestic and international institutions collaborating on the project; and (5) strengths and limitations of the REDCap system. REDCap is currently supporting 286 translational research projects in a growing collaborative network including 27 active partner institutions.
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            Three approaches to qualitative content analysis.

            Content analysis is a widely used qualitative research technique. Rather than being a single method, current applications of content analysis show three distinct approaches: conventional, directed, or summative. All three approaches are used to interpret meaning from the content of text data and, hence, adhere to the naturalistic paradigm. The major differences among the approaches are coding schemes, origins of codes, and threats to trustworthiness. In conventional content analysis, coding categories are derived directly from the text data. With a directed approach, analysis starts with a theory or relevant research findings as guidance for initial codes. A summative content analysis involves counting and comparisons, usually of keywords or content, followed by the interpretation of the underlying context. The authors delineate analytic procedures specific to each approach and techniques addressing trustworthiness with hypothetical examples drawn from the area of end-of-life care.
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                Author and article information

                Contributors
                Journal
                JMIR Form Res
                JMIR Form Res
                JFR
                JMIR Formative Research
                JMIR Publications (Toronto, Canada )
                2561-326X
                2024
                22 March 2024
                : 8
                : e49133
                Affiliations
                [1 ] Department of Psychology University of British Columbia Vancouver, BC Canada
                [2 ] Department of Physical Therapy University of British Columbia Vancouver, BC Canada
                [3 ] Children’s Hospital of Eastern Ontario Research Institute Ottawa, ON Canada
                [4 ] Department of Pediatrics and Emergency Medicine University of Ottawa Ottawa, ON Canada
                [5 ] School of Psychology Faculty of Social Sciences University of Ottawa Ottawa, BC Canada
                [6 ] Department of Neuroscience Carleton University Ottawa, ON Canada
                [7 ] Mobio Interactive Singapore Singapore
                [8 ] Department of Cellular and Molecular Medicine University of Ottawa Ottawa, ON Canada
                [9 ] Department of Psychology Simon Fraser University Burnaby, BC Canada
                Author notes
                Corresponding Author: Molly Cairncross molly_cairncross@ 123456sfu.ca
                Author information
                https://orcid.org/0000-0002-3845-6682
                https://orcid.org/0000-0001-8232-3804
                https://orcid.org/0000-0001-6378-148X
                https://orcid.org/0009-0009-4683-8099
                https://orcid.org/0000-0003-2452-934X
                https://orcid.org/0000-0001-7807-2459
                https://orcid.org/0000-0003-0069-2900
                https://orcid.org/0000-0002-8663-8771
                https://orcid.org/0000-0003-4826-5385
                https://orcid.org/0000-0002-1212-2473
                https://orcid.org/0000-0001-6216-7824
                https://orcid.org/0009-0008-9306-4236
                https://orcid.org/0000-0003-1673-129X
                https://orcid.org/0000-0002-3163-0844
                https://orcid.org/0000-0003-1926-0569
                Article
                v8i1e49133
                10.2196/49133
                10998177
                38517472
                456a71ee-7f0c-413b-a1cf-6f2174ed933a
                ©Kiarah M K O'Kane, Thalia Otamendi, Noah D Silverberg, Esther Choi, Veronik Sicard, Roger Zemek, Katherine Healey, Olivier Brown, Lauren Butterfield, Andra Smith, Gary Goldfield, Rachel Kardish, Bechara Saab, Andrée-Anne Ledoux, Molly Cairncross. Originally published in JMIR Formative Research (https://formative.jmir.org), 22.03.2024.

                This is an open-access article distributed under the terms of the Creative Commons Attribution License ( https://creativecommons.org/licenses/by/4.0/), which permits unrestricted use, distribution, and reproduction in any medium, provided the original work, first published in JMIR Formative Research, is properly cited. The complete bibliographic information, a link to the original publication on https://formative.jmir.org, as well as this copyright and license information must be included.

                History
                : 27 June 2023
                : 1 November 2023
                : 28 January 2024
                : 29 January 2024
                Categories
                Original Paper
                Original Paper

                adolescent,concussion,digital therapeutics,ehealth,mhealth,mindfulness,mobile health,social presence,working alliance

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