A New Era: The Growth of Video-Based Visits for Remote Management of Persons with Parkinson’s Disease

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Abstract

The COVID-19 pandemic forced the abrupt and rapid expansion of an alternative care model that embraces the use of video-based visits in the care of persons with Parkinson’s disease. Video-based visits not only eliminate the risk of infection but also reduce geography- and disability-related barriers to accessing specialist care. Research has established that they are feasible, acceptable to persons with Parkinson’s disease and patient-centered. In the Unites States, the relaxation of licensure requirements, adoption of reimbursement parity and investment in telemedicine infrastructure has enabled the rapid growth of video-based visits during the COVID-19 pandemic. Now, we must turn our attention to ensuring that progress made in expanding access to video-based care is not lost and expanded worldwide. More work is needed to identify the optimal video-based care model, establish best practices, and ensure equitable access to care.

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Global, regional, and national burden of Parkinson's disease, 1990–2016: a systematic analysis for the Global Burden of Disease Study 2016

E Dorsey, Alexis Elbaz, Emma Nichols … (2019)

Summary Background Neurological disorders are now the leading source of disability globally, and ageing is increasing the burden of neurodegenerative disorders, including Parkinson's disease. We aimed to determine the global burden of Parkinson's disease between 1990 and 2016 to identify trends and to enable appropriate public health, medical, and scientific responses. Methods Through a systematic analysis of epidemiological studies, we estimated global, regional, and country-specific prevalence and years of life lived with disability for Parkinson's disease from 1990 to 2016. We estimated the proportion of mild, moderate, and severe Parkinson's disease on the basis of studies that used the Hoehn and Yahr scale and assigned disability weights to each level. We jointly modelled prevalence and excess mortality risk in a natural history model to derive estimates of deaths due to Parkinson's disease. Death counts were multiplied by values from the Global Burden of Disease study's standard life expectancy to compute years of life lost. Disability-adjusted life-years (DALYs) were computed as the sum of years lived with disability and years of life lost. We also analysed results based on the Socio-demographic Index, a compound measure of income per capita, education, and fertility. Findings In 2016, 6·1 million (95% uncertainty interval [UI] 5·0–7·3) individuals had Parkinson's disease globally, compared with 2·5 million (2·0–3·0) in 1990. This increase was not solely due to increasing numbers of older people, because age-standardised prevalence rates increased by 21·7% (95% UI 18·1–25·3) over the same period (compared with an increase of 74·3%, 95% UI 69·2–79·6, for crude prevalence rates). Parkinson's disease caused 3·2 million (95% UI 2·6–4·0) DALYs and 211 296 deaths (95% UI 167 771–265 160) in 2016. The male-to-female ratios of age-standardised prevalence rates were similar in 2016 (1·40, 95% UI 1·36–1·43) and 1990 (1·37, 1·34–1·40). From 1990 to 2016, age-standardised prevalence, DALY rates, and death rates increased for all global burden of disease regions except for southern Latin America, eastern Europe, and Oceania. In addition, age-standardised DALY rates generally increased across the Socio-demographic Index. Interpretation Over the past generation, the global burden of Parkinson's disease has more than doubled as a result of increasing numbers of older people, with potential contributions from longer disease duration and environmental factors. Demographic and potentially other factors are poised to increase the future burden of Parkinson's disease substantially. Funding Bill & Melinda Gates Foundation.

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The Parkinson Pandemic—A Call to Action

E Dorsey, Bastiaan Bloem (2018)

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Patient Characteristics Associated With Choosing a Telemedicine Visit vs Office Visit With the Same Primary Care Clinicians

Mary E. Reed, Jie Huang, Ilana Graetz … (2020)

Key Points Question Which patient characteristics are associated with choosing either a telemedicine visit or an office visit with the same primary care clinician? Findings In this cross-sectional study of data from 1.1 million patients with 2.2 million primary care visits, 14% of visits were scheduled as telemedicine (primarily by telephone), with patients more likely to choose telemedicine with their personal primary care clinician. Patient demographic characteristics, and office visit barriers were significantly associated with choosing telemedicine. Meaning This study suggests a nuanced context for patient choice between a telemedicine visit and an office visit; the associations identified in this study may indicate opportunities for engagement with mobile technology access for those who face barriers to in-person visits.

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Author and article information

Journal

Journal ID (nlm-ta): J Parkinsons Dis

Journal ID (iso-abbrev): J Parkinsons Dis

Journal ID (publisher-id): JPD

Title: Journal of Parkinson's Disease

Publisher: IOS Press (Nieuwe Hemweg 6B, 1013 BG Amsterdam, The Netherlands )

ISSN (Print): 1877-7171

ISSN (Electronic): 1877-718X

Publication date (Electronic, preprint): 20 January 2021

Publication date (Electronic, pub): 16 July 2021

Publication date (Electronic, collection): 2021

Volume: 11

Issue: Suppl 1 , Digital Technology Driving Tangible Advancements in Parkinson’s Disease Research and Clinical Care

Pages: S27-S34

Affiliations

[a ] Department of Neurology, Northwestern University Feinberg School of Medicine , Chicago, IL, USA

[b ] Department of Neurology, University of Rochester , Rochester, NY, USA

[c ] Center for Health+Technology, University of Rochester , Rochester, NY, USA

Author notes

[1]

These authors contributed equally to this work.

[* ]Correspondence to: Ruth Schneider, MD, Box MIND, Uni-versity of Rochester, 265 Crittenden Blvd, Rochester, NY 14642, USA. Tel.: +1 585 273 1856; E-mail: ruth_schneider@ 123456urmc.rochester.edu .

Article

Publisher ID: JPD202381

DOI: 10.3233/JPD-202381

PMC ID: 8385503

PubMed ID: 33492246

SO-VID: 24028643-b8da-430e-bc60-89ce2b5a9933

License:

This is an open access article distributed under the terms of the Creative Commons Attribution Non-Commercial (CC BY-NC 4.0) License, which permits unrestricted non-commercial use, distribution, and reproduction in any medium, provided the original work is properly cited.

A New Era: The Growth of Video-Based Visits for Remote Management of Persons with Parkinson’s Disease

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Most cited references 36

Global, regional, and national burden of Parkinson's disease, 1990–2016: a systematic analysis for the Global Burden of Disease Study 2016

The Parkinson Pandemic—A Call to Action

Patient Characteristics Associated With Choosing a Telemedicine Visit vs Office Visit With the Same Primary Care Clinicians

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